Friday, May 17, 2019

Like the emperor’s new clothes, DNA kits are a tailored illusion

I recommend reading this article by George Estreich. Here are a few clips:
Most people remember the emperor: a vain ruler, swindled into paying for a nonexistent magical garment, parades in public, only to be embarrassed by a little boy. To me, the story is really about the swindling tailors. Audacious, imaginative, their true product is a persuasive illusion, one keyed to the vulnerabilities of their target audience. In contemporary terms, the story is about marketing; and as such, the tale is tailor-made for an examination of genetic ancestry tests, because these too are sold with expert persuasion, with promises woven from our hopes, our fears, and the golden thread of DNA.
With these new tests, as in Hans Christian Andersen’s 19th-century tale, a gap yawns between the promise and the reality – and now and then, as in the story, someone says so in the public square. For example, when Phil Rogers, a reporter in Chicago, tried out home DNA test kits from competing companies last year, he discovered contradictory results. So did the Canadian reporter Charlsie Agro and her twin sister Carly, who mailed spit samples to 23andMe, FamilyTreeDNA, AncestryDNA, MyHeritage and LivingDNA. As with Rogers, the companies gave different histories – Balkan ancestry, for example, ranged from 14 to 61 per cent – but 23andMe actually reported different scores for each twin. (According to the company, Charlsie has French and German ancestors, while Carly does not.)
The tests are sold with variations on a single pitch: find your story. The companies don’t mention that the story might shade into fiction, or that stories can conflict. The evolutionary geneticist Mark Thomas at University College London has dismissed ancestry testing as ‘genetic astrology’, but it could be as useful to think of it as genetic gossip: a rumoured past that, like most rumours, is at least partly true.
Chasing his dreams of status and power, the emperor misses the swindle: the ‘weavers’ make off with tangible wealth, while the emperor receives nothing. The entire performance is a masterful misdirection, a distraction from the truth of the exchange. In the same way, the promises of discovering identity and the genealogical past are a misdirection: the real exchange takes place offstage, with drug companies and others paying for access to the data that customers actually pay to give. Once it’s given, customers are vulnerable to future data breaches (and you can’t, at this date at least, change your genome), and they aren’t guaranteed compensation for any profits the data might lead to.

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